Learning that your child will have Down syndrome can be overwhelming. You are probably experiencing a range of emotions as you adjust to the diagnosis. We invite you to contact our organization so that we may offer you support and help you connect with other families who understand what you are going through.
The following resources are intended to help you learn more about Down syndrome and get accurate and current information about your child’s future. We hope these resources will help you understand how having a child with Down syndrome can enhance the family.
The Light at the End of the Tunnel brochure provides a collection of stories from other prenatally diagnosed couples so you can learn what information was helpful to them. You may also wish to visit the Brighter Tomorrows or National Down Syndrome Congress expectant parent websites to learn more.
Please read The Down Syndrome Guild of Kansas City’s award-winning New Beginnings Parent Magazine for inspiration and guidance on your journey. You may also enjoy reading the National Down Syndrome Society’s Promising Future Together booklet or the new parent guide disseminated by the Down Syndrome Association of the UK. Read What Parents Wished They’d Known for some interesting insight from parents reflecting on when they were given their child’s diagnosis.
Down Syndrome Pregnancy is a wonderful resource that walks expectant couples through their pregnancies and provides many resources along with the ability to connect with other parents who have walked in your shoes. You can download a free e-book at this site as well.
Babies with Down Syndrome book is a guide for new parents that covers all aspects of care for babies and young children with Down syndrome. It includes daily care, family life, intervention, education and legal and medical issues. This book and The First 18 Months DVD are included in your New Parent Package. Please make sure you request one through our website or by calling at 713.682.7237.
Diagnosis Down Syndrome: This Web site’s purpose is to inform you of the realities that a person with Down syndrome can look forward to today and includes stories and photos from parents of children with Down syndrome.
New parents also find this “Welcome to Holland” story is very telling about their experiences.
Feel free to contact DSAH with ANY questions! We are here for you. We can match you with other parents who have walked in your shoes, refer you to community based service providers, lend you books and videos from our lending library and deliver a welcome basket full of resources. For more information contact 713-682-7237 or [email protected].